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Cerebral Palsy

Cerebral Palsy [CP] is an umbrella term covering a group of nonprogressive, but often changing motor impairment syndromes secondary to lesions or anomalies of the brain arising in the early stages of development (i.e. up to 5 years). It includes various kinds of disabilities such as difficulty and alternate movements, abnormal movements and postures and difficulty in keeping the body in antigravity postures.

There are various types of CP. The major concern here is that the causes vary but there seems to be no cure for it. It was found that the ratio of Cerebral Palsy kids in our country is 2.5:1000. The people from rural areas need assistance not only in diagnosis, prevention and treatment, but also funds.

CP-Project-2014_7

Our Work towards Prevention of Cerebral Palsy

We interviewed several parents of kids who were affected by Cerebral Palsy. Our findings showed that children are not always born with CP; it is a condition which could happen at birth, due to human error. With the advice from industry experts, we understood that CP is preventable and requires awareness to public. This led us to create a short and informative documentary about the issues that CP affected children face. The below videos aim to demonstrate the remedial aspects, educate people on its causes and the primary and secondary prevention measures of CP. It also promotes importance of physiotherapy and the benefits of CP affected children joining a specialized school.
This video aims to demonstrate the remedial aspects, educate people on its causes, and the primary and secondary prevention measures of CP. It also promotes the importance of physiotherapy and the benefits of CP-affected children joining a specialized school.
Advice by Dr. Latha Venkataraman, Gynecologist, and an Obstetrician from Bangalore.

This video aims to demonstrate what a to-be mother to do before the pregnancy and during the pregnancy and till the birth of the child.

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Advice by Dr. Janaki Vishwanathan, Neonatalogist from Bangalore.

This video aims to demonstrate the care to be taken for a child just after the first breath of the baby till it turns 5 years.

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Advice by Dr. Indumathi Rao, Regional Coordinator (CBR).

This video aims to educate the people on dos and don’ts of a child with Cerebral Palsy condition.

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CP Project 2014 Gallery

CP Project 2014_1
CP Project 2014_2
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CP-Project-2014_4
CP Project 2014_5
CP-Project-2014_6
CP-Project-2014_7
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Skill Development
( Have assessed 75 kids)

As part of Secondary prevention of Cerebral Palsy, it is necessary to include a practical approach on the benefit of Physio therapy and skill development programs.
As experts say, periodical Physiotherapy and early interventions plays a major role in ensuring the well being of a person affected with cerebral palsy condition.

Physiotherapy is often the first step in treating cerebral palsy. It can help improve motor skills and can prevent movement problems from getting worse over time. Physiotherapy can help relieve pain, muscle stiffness, and improve overall mobility. It can also prevent future health problems like tightened muscles.

Physiotherapy implements strength and flexibility exercises, heat treatment, massages and special equipment to give children with cerebral palsy more independence. The extent to which physiotherapy helps depends on the severity and type of each case of cerebral palsy.

Children with milder cases of CP may only require some physiotherapy to treat their condition. In more severe cases, it may be used alongside other treatments or medications. Beginning physiotherapy as early as possible usually gives children the best chances at improvement.

Skill development for inclusive education includes IQ assessment, SQ assessment, skills based assessment in various developmental areas. This will be followed by a guidance to teachers and care givers to implement individual education plan.

Progress of each kid’s development shall be periodically monitored. Skill development training covers how different groups of children are formed- pre primary, primary, pre-vocational etc. Also Reading and understanding IEP, setting long term and short term and weekly goals for learning shall be given to the care takers.

This will be followed by a guidance to teachers and care givers to implement individual education plan. Progress of each kid’s development shall be periodically monitored.

Guidance shall be provided in setting the class room time table, using resources, activity management. Assignments are given and follow-up will be done for a month and further mile stones shall be set for further growth.

World Cerebral Palsy Day – 6th October 2017 @ All India Institute of Speech and Hearing (AIISH)

We presented a paper at the Annual Conference on prevention of Cerebral Palsy to 200 ANMs at All India Institute of Speech and Hearing, Manasagangothri, Mysore.
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World Cerebral Palsy Day – 6th October 2017 @ All India Institute of Speech and Hearing (AIISH)

We presented a paper at the Annual Conference on prevention of Cerebral Palsy to 200 ANMs at All India Institute of Speech and Hearing, Manasagangothri, Mysore.
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‘Kere Habba’, which literally translates into ‘Lake Festival’ in Kannada, is a full-day fete that takes place at the Kaikondrahalli Lake in Bangalore. It had its first edition in 2015, and people from across the city got to see Bangalore’s lake heritage in all its splendour. This year, to spread awareness about Cerebral Palsy to a much bigger audience, we at Sanmitra Trust put up our own stall in the ‘Citizen’s Corner’ at the Kere Habba, on the 8th January, 2017.
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“Citizen’s Corner” at the Kere Habba, on the 8th January, 2017.

“Citizen’s Corner” at the Kere Habba, on the 8th January, 2017.

‘Kere Habba’, which literally translates into ‘Lake Festival’ in Kannada, is a full-day fete that takes place at the Kaikondrahalli Lake in Bangalore. It had its first edition in 2015, and people from across the city got to see Bangalore’s lake heritage in all its splendour. This year, to spread awareness about Cerebral Palsy to a much bigger audience, we at Sanmitra Trust put up our own stall in the ‘Citizen’s Corner’ at the Kere Habba, on the 8th January, 2017.
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Awareness workshops Conducted at Schools, Colleges and Anganawadis: Educated 2000+ People

The research on the niche topic Cerebral palsy showed that it is preventable and not curable. Only way is to bring awareness to families about the remedial aspects of cerebral palsy and educating them about the importance of intake of nutritional food, prenatal and post-natal care, abandoning marriages in blood relation, and early mother hood. Awareness programs also focus on importance of daily physiotherapy, when and how to provide the much-needed physical therapy at home itself. The workshop focussed on skill development for cerebral palsy affected kids, and encouraging the students towards inclusive education

Awareness workshops Conducted at Schools, Colleges and Anganawadis: Educated 2000+ People

The research on the niche topic Cerebral palsy showed that it is preventable and not curable. Only way is to bring awareness to families about the remedial aspects of cerebral palsy and educating them about the importance of intake of nutritional food, prenatal and post-natal care, abandoning marriages in blood relation, and early mother hood. Awareness programs also focus on importance of daily physiotherapy, when and how to provide the much-needed physical therapy at home itself. The workshop focussed on skill development for cerebral palsy affected kids, and encouraging the students towards inclusive education
We sponsored a project on Prevention of Cerebral Palsy in India which was telecast on Doordarshan – Chandana as part of “Arogya Bharatha”. As volunteers, Suma Prasad and Shanthalakshmi from Sanmitra Trust visited Pavagada, rural part of India near Tumkur, Karnataka and conducted an interview with parents of cerebral palsy affected children.

We conducted interviews and realized that mal nutrition during pregnancy, no proper neonatal care in rural health centers, less awareness of villagers about the wellbeing of an expectant mother, not visiting doctors during their pre natal care, and most importantly marriages in blood relation, early marriage and early motherhood are major causes for giving birth to a cerebral palsy affected kids. The purpose of the visit also included bringing awareness to families for remedial aspects of cerebral palsy.

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Prevention of Cerebral Palsy in India – Doordarshan Broadcast: 23rd October 2013

Prevention of Cerebral Palsy in India – Doordarshan Broadcast: 23rd October 2013

We sponsored a project on Prevention of Cerebral Palsy in India which was telecast on Doordarshan – Chandana as part of “Arogya Bharatha”. As volunteers, Suma Prasad and Shanthalakshmi from Sanmitra Trust visited Pavagada, rural part of India near Tumkur, Karnataka and conducted an interview with parents of cerebral palsy affected children. We conducted interviews and realized that mal nutrition during pregnancy, no proper neonatal care in rural health centers, less awareness of villagers about the wellbeing of an expectant mother, not visiting doctors during their pre natal care, and most importantly marriages in blood relation, early marriage and early motherhood are major causes for giving birth to a cerebral palsy affected kids. The purpose of the visit also included bringing awareness to families for remedial aspects of cerebral palsy.
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